9 Comments

Very interesting, thank you. A clear pointer to the direction of travel for care, with continuous, sensor-driven monitoring and AI-driven analysis to help titrate treatments &/or recommend specialist interventions. One issue I foresee is that we will wish to have as few sensors and apps as possible for all of our co-morbidities, which will require some higher level co-ordination. I should declare that I have an interest in the field with my Board position representing Parkwalk Advisors as investor at Charco Neurotech.

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I do think that the combination of drugs, sensors and access to data is going to be a big thing for medicine in the future, allowing patients with chronic illnesses to tailor the regime to their own lifestyle. I love the idea of moving the medicine time so that you can continue to enjoy the fry-up. That puts you in charge.

Big hugs to #sophiefromromania 😍

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This is fascinating stuff Rory. Glad to hear the drugs do work, and that technology can play such a useful part of this. And hopefully they can develop smaller and more discreet sensors over time.

Say hello to #sophiefromromania!

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Life can be extremely tough! In fighting any disease we must use every tool in the toolbox so that you can control the disease and not let the disease control you! Your’s is a great example! Thanks for sharing!

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Interesting article, Rory. But is it not the case that only something like 35% of PwPs actually demonstrate motor symptoms or movement disorders? What about the huge number of us who are more affected by other symptoms, like speech difficulties, swallowing, dribbling, depression, anxiety, apathy, demotivation etc. etc. etc? Where are the data on these, and on the effectiveness (or not) of current drug therapies for these kinds of symptoms?

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I would be interested to know if you are still using your CUE1 as I have just ordered one and I am waiting for them to come and show me how it works .

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I have just spent a week with the PKG watch. I don't think the data will be as sophisticated as the multiple sensors - I will let you know.

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Thank you. Very useful.

I got the app, following your first post on this topic, but I didn't know how to use it.

I have biphasal dyskinesia, which is horribly difficult to manage because it can sometimes be reduced in severity by taking less levodopa, but at other times it is a dose of levodopa that gets rid of the symptom. I can see how this tool could help me and my neurologist work out the optimum dosage of levodopa to keep the dyskinesia to a minimum.

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