Getting out and about to Brighton and other big towns and cities to spread the word and get signatures sounds like a good idea- but hard work. Especially when you’re reliant on the weather! I was wondering what you know about the demographics of people have already signed- and that led me to thinking about raising awareness of the charter with a younger millennial gen z audience A - how about using the sons /daughters and their communities - of parents with Parkinson’s to get the message out/ they have massive digital reach- the qr code makes it easy to sign up. Raise awareness of Movers snd Shakers with the younger generations for whom this could make a real difference in the future…
Hello Rory, I am just wondering ... I read the government recent response to your charter petition and, if I recall correctly, some of the 'excuse/reason' for not consenting was based on not being able to make a special case for PD over and above other medical conditions demanding attention. Is there any mileage in answering this to some extent by widening the scale of the appeal by joining forces with the groups relevant to people who have other neurological illnesses such as MS? (I don't, as far as I know, have PD but my husband did and I very much wish success for the Charter)
Hi Rory, how about a Tik Tok video? And/or could you get a segment on This Morning or something similar? Or maybe Jeremy Kyle's radio show? (You've probably already thought of these things...) I've also read that Harry Styles's grandfather has Parkinsons so maybe you could try and get him/his Mum involved? Good Luck! 🙂
https://mwww.neurotherapynetwork.org.uk/ - have you tried contacting therapy centres? Many cover a number of neurological conditions and I would have thought be very happy to support
Hi a link to your petition on this story would have been good.... need another phone ( I think!?) to scan from the picture you put on here. Would then send to all my friends (my twin sister has Parkinson's) thanks jane
I'm sure it's possible to get lots more signatures by sept.
Getting out and about to Brighton and other big towns and cities to spread the word and get signatures sounds like a good idea- but hard work. Especially when you’re reliant on the weather! I was wondering what you know about the demographics of people have already signed- and that led me to thinking about raising awareness of the charter with a younger millennial gen z audience A - how about using the sons /daughters and their communities - of parents with Parkinson’s to get the message out/ they have massive digital reach- the qr code makes it easy to sign up. Raise awareness of Movers snd Shakers with the younger generations for whom this could make a real difference in the future…
Hello Rory, I am just wondering ... I read the government recent response to your charter petition and, if I recall correctly, some of the 'excuse/reason' for not consenting was based on not being able to make a special case for PD over and above other medical conditions demanding attention. Is there any mileage in answering this to some extent by widening the scale of the appeal by joining forces with the groups relevant to people who have other neurological illnesses such as MS? (I don't, as far as I know, have PD but my husband did and I very much wish success for the Charter)
Hi Rory, how about a Tik Tok video? And/or could you get a segment on This Morning or something similar? Or maybe Jeremy Kyle's radio show? (You've probably already thought of these things...) I've also read that Harry Styles's grandfather has Parkinsons so maybe you could try and get him/his Mum involved? Good Luck! 🙂
Fantastic work … very much needed
Fantastic work … very much needed
Fantastic work … very much needed
https://mwww.neurotherapynetwork.org.uk/ - have you tried contacting therapy centres? Many cover a number of neurological conditions and I would have thought be very happy to support
Hi a link to your petition on this story would have been good.... need another phone ( I think!?) to scan from the picture you put on here. Would then send to all my friends (my twin sister has Parkinson's) thanks jane
I'm sure it's possible to get lots more signatures by sept.