13 Comments
Aug 4, 2022Liked by Rory Cellan-Jones

Thanks for taking the time to do this Rory. I was diagnosed in 2020 at 52 and like you have been a keen skier my whole life. We have the usual family trip planned for Austria (after a three year Covid break) and as much as I am desperately looking forward to it I am also somewhat anxious. You’ve given me a real insight as to what to expect, and the thought of a few extra “coffee” Breaks during the day is quite cheery (although I’ll need to make sure I’m a bit closer to the toilets!!) Thank you again, it’s really helps.

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Thank you so much for sharing this experience, Rory. My issues are with spinal degenerative disc disease, which has led to 13 operations on my lumbar and cervical spine and a lot of subsequent nerve damage and weakness in my legs. Reading your experience skiing with Parkinsons related weakness is extremely helpful.

Do keep pushing through and sharing your experiences and also those of people you meet in your journey with Parkinsons. Wishing you all the very best, Ian

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Mar 15, 2022Liked by Rory Cellan-Jones

I was diagnosed in Sept at 50 and did my first ever ski a week ago. Everything you said I recognise - although not ever having had a pre diagnosis comparison. I was way out of my comfort zone but loved it! My hubby says I have to adapt to survive and that’s my new mantra. Thanks for this article - I was worried it was going to be can’t rather than can. And as my neuro says ‘I can’t play cricket any more and it’s just age; we all have to face things we are no longer as good at’. His pragmatism makes sense when I’m railing against the diagnosis! X

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Good luck Allister! Not entirely sure I will ski next year but not ruling it out. I think stamina is the key - I could have prepared better for this year's trip...

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I have been diagnosed with Parkinson's disease since 2010, by the VA. I found that none of the current medications worked (side effects for me). I currently take pramipexole dihydrochloride three times daily. It isn’t working well neither. I still have some tremors. Was on carbidopa levodopa but only lasted 90 minutes then wore off. Down side of carbidopa is after reaching max dosage it will no longer give relief, nothing was working for me and to make matters worse There has been little if any progress in finding a reliable medical treatment for Parkinson’s disease, I was approved by my neurologist to try feasible alternatives to my current prescribed medication in the hope of improving my quality of life. and I have to say this natural treatment from HEALTH HERBS CLINIC is a 100% game changer for anyone with PD. It has been a complete turnaround with my balance, mobility, double vision, swollen feet, speech and tremors this is the best that I've felt in years. I have stop taking levodopa completely for several months, at least 7 months now, and still feel great. Visit Health Herbs Clinic website healthherbsclinic .com

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That is fantastic Rory. An inspirational read. Well done mate and do keep going. Great to read about the pluses and benefits. If I had been there I would have got your boots on for you. As a ski teacher I have done it for hundreds of people - and hate doing my own.

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Rory. Inspiring! Thank you for sharing.

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Respect, Rory! And beautifully told as ever.

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Good on you for having the guts & determination to do this. I hope that it inspires others in a similar position to yourself.

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As a non skier I’m in awe Rory. I’m glad you had a good time and I’m sure you’re right that it’s worth it for your mental and physical good to keep on doing it!

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Great report!

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Thank you for outlining the challenges, Rory, and being so honest.

Did you find it even more difficult accommodating to vision perception with your OM eye?

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