13 Comments

Great achievement. Thanks for doing this. The shortage of neurologists is incredibly shocking and I know from family experience that it also affects other patient groups such as MS in the same ways. Good luck with your campaigning.

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On the face of it, a good meeting and an opportunity to raise the profile of PD and its woeful neglect by the NHS. I do hope it turns out to be more than just an exercise in paying lip service to the issues in what are generally regarded as the dying days of this government. But don’t let such pessimism hold you back…. 😊

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A fantastic achievement in raising awareness of our plight.

Shocking but sadly not surprised that our health minister was so unaware of the basic facts and figures.

Thank you and well done Movers & Shakers team with Parkinson’s Uk.

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This is brilliant x great work, important work. I had no idea about Parkinson’s’ until I got diagnosed age 51 two years ago - the work you do is so appreciated! I had the pleasure of meeting Paul and Gillian in the Red Lion! Thank you!

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Well done, encouraging ! Nice to meet you at Charing Cross Hosp on Monday. The other Rory!

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Well done, encouraging ! Nice to meet you at Charing Cross Hosp on Monday. The other Rory!

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Many heartfelt thanks for your hard work. My husband has had Parkinson’s for 20 years and has always had to “bang the desk” to get appointments with his parkie consultant (as more often than not 18 months can go by).

As for other parkie therapies ( physio, speech, OT)….well they might as well not exist! Parkie Exercise classes… have nothing in the area.

It’s a shambles

Kindest Regards, Davina

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Educating the political and NHS & policymakers seems key for the charter and PD care. Perhaps not what was expected, but you now have the momentum and a great team that will achieve major shifts in PD profile and care.

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Many thanks for your efforts.

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Well done! Thank you very much - keep it up!

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Brilliant work. We all need to do our bit and get the word out there about this condition. The lack of early diagnosis and availability of specialist consultations is not acceptable.

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Thanks for this reassuring update. And keep going!!!

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Excellent. Well done. I was looking at

PD related datasets on the office for national stat

S site and found a woeful lack of info. Considering its prevalence I find that quite worrying.

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