Anyone with Parkinson’s - or, I imagine any other long term degenerative condition - soon learns how to read the news. By which I mean we become less likely to crack open a bottle or do a jig when we read excited headlines about some wonder drug or new treatment that might transform our lives.
I wince at those 'cure' headlines: they may stir hope, but they also sell extra copies of the Express/Mail .. When I divorced my ex she sat in mediation and claimed that I should not get any proceeds of the house sale because 'there's a cure for Parkinson's' .. the mediator winced as much as I did. Ignorance is often bred by news.
The present med levodopa is older than me and with so many side effects why oh why the Neuro doctors physiotherapists etc do not accept & recommend alternative medicine such as natural levodopa or velvet beans which they can along with pharmaceuticals turn it to tablets so that it is the dosage every time but without any side effects can’t you challenge them ?
Non-Parkies often seem surprised when I don’t jump at every newspaper headline, but the journey with PD is very much a long haul one, and we Parkies learn to live only with cautious optimism.
Another piece of good news on the research front from Univ Gent (so again, promising but needs more study). Reported on VRT Belgian national TV yesterday. Here's an English version, will copy the VRT article also (can chuck into Google Translate). https://www.eurekalert.org/news-releases/1040133
I wince at those 'cure' headlines: they may stir hope, but they also sell extra copies of the Express/Mail .. When I divorced my ex she sat in mediation and claimed that I should not get any proceeds of the house sale because 'there's a cure for Parkinson's' .. the mediator winced as much as I did. Ignorance is often bred by news.
The present med levodopa is older than me and with so many side effects why oh why the Neuro doctors physiotherapists etc do not accept & recommend alternative medicine such as natural levodopa or velvet beans which they can along with pharmaceuticals turn it to tablets so that it is the dosage every time but without any side effects can’t you challenge them ?
Very eloquently put, as always.
Non-Parkies often seem surprised when I don’t jump at every newspaper headline, but the journey with PD is very much a long haul one, and we Parkies learn to live only with cautious optimism.
https://open.substack.com/pub/realmattross/p/im-sick-of-small-bets-incremental?r=oqe74&utm_medium=ios
https://www.vrt.be/vrtnws/nl/2024/04/03/stoelgangtransplantatie-helpt-met-mensen-parkinson/
Another piece of good news on the research front from Univ Gent (so again, promising but needs more study). Reported on VRT Belgian national TV yesterday. Here's an English version, will copy the VRT article also (can chuck into Google Translate). https://www.eurekalert.org/news-releases/1040133