I’m up for it! I am already part of Biobank (https://www.ukbiobank.ac.uk/) so experiment away! I am 73 and have no symptoms of Parkinson’s, but if I develop it, I would love to help people in the future.
As the ex partner of a man diagnosed in his early 40s with PD, personally I'm not convinced about exercise slowing progression. That's because, since his early 20's he has been, and still is, an almost religious 3 times a week gym and certainly doesn't live a sedentary lifestyle. Trust me when I say this guy pushes hard at the gym!
This would have really helped my husband. He started REM sleep disorder about 5 years before his diagnosis. I happened to listen to a podcast about sleep and sleep disorders where they stated that approx 40% of people with REM sleep disorders go onto develop neurological problems and it was best to get it checked out. He mentioned it to his doctor who didn't know what he was talking about and nothing happened. Diagnosis eventually came after a suggestion that he saw a neurologist from a knee specialist that he was seeing as he was dragging his foot. An earlier diagnosis may have helped with increased exercise and workplace stress avoidance. So yes, I think it's a plus - but GPs must be more aware of it.
Unfortunately, while this is news is probably irrelevant for Parkinson's sufferers it is good news for the insurance industry. They are gearing up to demand a raft of tests (everything from cancer to the bubonic plague) before you take up life and health insurance. These so-called pre-conditions will impact your benefits and claims and may exclude you totally from being able to access any insurance or private health cover. This particularly affects people in the US and Australia where private coverage is seen as a way around the over-pressured public health system. By the way. A shout out to Australia's public health system which treated my prostate cancer for free using a radiotherapy technique developed in the UK. Thank you all health workers.
My fella had idiopathic REM sleep behaviour disorder (iRBD) for at least 15 years before anyone decided to check him for PD, but by then he had developed many more symptoms. Unless you are a PD doctor, you will know next to nothing about it,so why would you put someone forward for tests?
My God! I can barely deal with my diagnosis now! I’m 72, it would destroy me to have known about it in my early 60’s. I’m with the comedian…unless it’s about a cure, I don’t really want to hear about it! With apologies, I’m still very angry about my diagnosis. (And yes, I’m doing everything I I can to mitigate its progress.)
I’m up for it! I am already part of Biobank (https://www.ukbiobank.ac.uk/) so experiment away! I am 73 and have no symptoms of Parkinson’s, but if I develop it, I would love to help people in the future.
If the research is right and vigorous exercise can slow progression, then the earlier you know the better…
As the ex partner of a man diagnosed in his early 40s with PD, personally I'm not convinced about exercise slowing progression. That's because, since his early 20's he has been, and still is, an almost religious 3 times a week gym and certainly doesn't live a sedentary lifestyle. Trust me when I say this guy pushes hard at the gym!
This would have really helped my husband. He started REM sleep disorder about 5 years before his diagnosis. I happened to listen to a podcast about sleep and sleep disorders where they stated that approx 40% of people with REM sleep disorders go onto develop neurological problems and it was best to get it checked out. He mentioned it to his doctor who didn't know what he was talking about and nothing happened. Diagnosis eventually came after a suggestion that he saw a neurologist from a knee specialist that he was seeing as he was dragging his foot. An earlier diagnosis may have helped with increased exercise and workplace stress avoidance. So yes, I think it's a plus - but GPs must be more aware of it.
Unfortunately, while this is news is probably irrelevant for Parkinson's sufferers it is good news for the insurance industry. They are gearing up to demand a raft of tests (everything from cancer to the bubonic plague) before you take up life and health insurance. These so-called pre-conditions will impact your benefits and claims and may exclude you totally from being able to access any insurance or private health cover. This particularly affects people in the US and Australia where private coverage is seen as a way around the over-pressured public health system. By the way. A shout out to Australia's public health system which treated my prostate cancer for free using a radiotherapy technique developed in the UK. Thank you all health workers.
My fella had idiopathic REM sleep behaviour disorder (iRBD) for at least 15 years before anyone decided to check him for PD, but by then he had developed many more symptoms. Unless you are a PD doctor, you will know next to nothing about it,so why would you put someone forward for tests?
My God! I can barely deal with my diagnosis now! I’m 72, it would destroy me to have known about it in my early 60’s. I’m with the comedian…unless it’s about a cure, I don’t really want to hear about it! With apologies, I’m still very angry about my diagnosis. (And yes, I’m doing everything I I can to mitigate its progress.)