We have been overwhelmed by the warmth of the reception for Movers and Shakers, our new podcast about Parkinson’s. What moved us most were the messages from people who have Parkinson’s or their family members telling us how comforting it was to hear it discussed by some familiar voices:
Rory, I’m new to M&S and as the partner of a ‘Parky’ it was so good to hear others share, discuss and laugh at the experiences we’ve had over the last 12 years. I’ve just listened to the Young Onset episode and was shocked to hear you talking about your annual visit to your consultant. Hilary (72) has not seen her consultant since the day she was diagnosed. She sees the Parkinson’s Nurse every Six to eight months but not the consultant. She was told in November that she should see a consultant but as yet we have no date for this to happen. The show also tackled the problems with benefits. We weren’t told that Hilary would qualify for PIP until last year, 11 years of lost payments! A few years ago I noticed that it was possible to get a Disabled Persons Rail Card and was stunned find that with hearing aids I qualified but with Parkinson’s Hilary didn’t!
I'm hooked - woke at 6am (as you do with PD) on Saturday and the show was my treat. I Like the Travelling Willburys comparison. The End of the Line (the title of my book on tube stations & PD) is also a song by the Travelling Wilburys.
"All the Wilburys except Bob Dylan take turns as lead singers; George Harrison, Jeff Lynne and Roy Orbison sing the choruses in turn, while Tom Petty sings the verses. The song was mainly written by Harrison though all five members of the group get a songwriting credit in line with the collaborative spirit of the Wilburys project.
The song is a gentle thing and the last two verses fit well with where I’m at
Well, it's alright, even if you're old and grey
Well, it's alright, you still got something to say
Well, it's alright, remember to live and let live
Well, it's alright, the best you can do is forgive
Well, it's alright (alright), riding around on the breeze
Well, it's alright (alright), if you live the life you please
Well, it's alright, even if the sun don't shine
Well, it's alright (alright), we're going to the end of the line
Rory, I’m new to M&S and as the partner of a ‘Parky’ it was so good to hear others share, discuss and laugh at the experiences we’ve had over the last 12 years. I’ve just listened to the Young Onset episode and was shocked to hear you talking about your annual visit to your consultant. Hilary (72) has not seen her consultant since the day she was diagnosed. She sees the Parkinson’s Nurse every Six to eight months but not the consultant. She was told in November that she should see a consultant but as yet we have no date for this to happen. The show also tackled the problems with benefits. We weren’t told that Hilary would qualify for PIP until last year, 11 years of lost payments! A few years ago I noticed that it was possible to get a Disabled Persons Rail Card and was stunned find that with hearing aids I qualified but with Parkinson’s Hilary didn’t!
very interesting podcast made me laugh and nearly cry when i thought back to when i was told of my diagnosis
I'm hooked - woke at 6am (as you do with PD) on Saturday and the show was my treat. I Like the Travelling Willburys comparison. The End of the Line (the title of my book on tube stations & PD) is also a song by the Travelling Wilburys.
"All the Wilburys except Bob Dylan take turns as lead singers; George Harrison, Jeff Lynne and Roy Orbison sing the choruses in turn, while Tom Petty sings the verses. The song was mainly written by Harrison though all five members of the group get a songwriting credit in line with the collaborative spirit of the Wilburys project.
The song is a gentle thing and the last two verses fit well with where I’m at
Well, it's alright, even if you're old and grey
Well, it's alright, you still got something to say
Well, it's alright, remember to live and let live
Well, it's alright, the best you can do is forgive
Well, it's alright (alright), riding around on the breeze
Well, it's alright (alright), if you live the life you please
Well, it's alright, even if the sun don't shine
Well, it's alright (alright), we're going to the end of the line
There’s also a Metallica number by the same name - but though apparently about climate change I could not be bothered to say more about it here." https://nickcomercalder.substack.com/p/the-end-of-the-line-aka-parkinsons
The link to Google Podcast is incorrect - it still leads to Apple Podcast