Here are some of the things I have learnt about the disease having been diagnosed since 2010.
Everyone is different which makes diagnosis and drug regime very much down to the individual.
Access to a consultant is very difficult after the initial diagnosis.
I have access to a specialist Parkinsons nurse on the NHS via email and appointment in person. I have a default fee to face appointment on a 6 monthly cycle.
At these appointments she runs through all 40 odd symptoms to establish whether any new ones have developed and the level of existing. The nurse is excellent and through trial and error I have secured a regime of regular Stalevo taken every 2 hours. I vary my dose during the day depending on how I feel. The differential in the dose is between 75mgs to 100mgs
I set alarms on my mobile to remind me to take the meds. It is crucial to take the pills on time.
No regime is perfect. Get used to it. It’s taken me 10 years to get this right and I expect things will change as time goes by
Is there any research as to why senior and respected BBC journalists develop Parkinson’s? I didn’t know about Mark’s diagnosis (who I worked with when he was in Brussels).
Aaagh you’re right. Corrected
Here are some of the things I have learnt about the disease having been diagnosed since 2010.
Everyone is different which makes diagnosis and drug regime very much down to the individual.
Access to a consultant is very difficult after the initial diagnosis.
I have access to a specialist Parkinsons nurse on the NHS via email and appointment in person. I have a default fee to face appointment on a 6 monthly cycle.
At these appointments she runs through all 40 odd symptoms to establish whether any new ones have developed and the level of existing. The nurse is excellent and through trial and error I have secured a regime of regular Stalevo taken every 2 hours. I vary my dose during the day depending on how I feel. The differential in the dose is between 75mgs to 100mgs
I set alarms on my mobile to remind me to take the meds. It is crucial to take the pills on time.
No regime is perfect. Get used to it. It’s taken me 10 years to get this right and I expect things will change as time goes by
The podcast is great
Tom Davis
Tel: 01565 654671
Mob: 07793 118900
Email: tom@egl.city
Is there any research as to why senior and respected BBC journalists develop Parkinson’s? I didn’t know about Mark’s diagnosis (who I worked with when he was in Brussels).
Most privileged to witness this procedure as a RN
To resume Holding a cup of coffee or a book ect.
I believe you have a typo in the reference to your Twitter account - should read @moversand6 as opposed to @movers - thanks for a wonderful podcast.