From experience with my mother in law I know all of this to be very accurate, helpful and vital. We had specific music on hand to help calm her when using the car, videos to engage her and photo albums for her to scan through. All of these visual aids to memory would raise her mood or calm her. Even when she was apparently unconscious in a hospital bed just before she died certain music would calm her restlessness. Specifically the theme to Out of Africa!
We did a long pilot trial with Kraydel here at B4RN. It is a brilliant service. My relative is now in a nursing home and all we have is facetime, but there is no plug near her chair so it is nearly always flat, and the wifi in her room is so bad the calls drop out. None of the nursing staff understand. There is much work to be done Rory, good luck with it.
It would be good if you could get one of the candidates for Tory leader to mention they support this project to help dementia sufferers. If a million families are touched by dementia that might potentially connect with a lot of voters across the country who could be swayed by a candidate showing their caring side.
Its a possibility that a small molecule called ISRIB has ability to enhance cognitive capacity and reverses cognitive deficits. I very aware its very days (mouse studies) but I think its best shot.
This is an excellent project Rory and as you say needs core funding and training support for badly paid under motivated staff. In many care homes there aren’t any activities on offer as it stands and others have only employed activities coordinator roles under pressure from CQC inspections. So making it part of the inspection regime might be a really good start. I will follow its progress with great interest. Btw is the bbc scheme /platform available already? (My wife is an activity coordinator in a care home and would love access to such a resource)
From experience with my mother in law I know all of this to be very accurate, helpful and vital. We had specific music on hand to help calm her when using the car, videos to engage her and photo albums for her to scan through. All of these visual aids to memory would raise her mood or calm her. Even when she was apparently unconscious in a hospital bed just before she died certain music would calm her restlessness. Specifically the theme to Out of Africa!
We did a long pilot trial with Kraydel here at B4RN. It is a brilliant service. My relative is now in a nursing home and all we have is facetime, but there is no plug near her chair so it is nearly always flat, and the wifi in her room is so bad the calls drop out. None of the nursing staff understand. There is much work to be done Rory, good luck with it.
It would be good if you could get one of the candidates for Tory leader to mention they support this project to help dementia sufferers. If a million families are touched by dementia that might potentially connect with a lot of voters across the country who could be swayed by a candidate showing their caring side.
Its a possibility that a small molecule called ISRIB has ability to enhance cognitive capacity and reverses cognitive deficits. I very aware its very days (mouse studies) but I think its best shot.
This is an excellent project Rory and as you say needs core funding and training support for badly paid under motivated staff. In many care homes there aren’t any activities on offer as it stands and others have only employed activities coordinator roles under pressure from CQC inspections. So making it part of the inspection regime might be a really good start. I will follow its progress with great interest. Btw is the bbc scheme /platform available already? (My wife is an activity coordinator in a care home and would love access to such a resource)
Thanks Mike. Yes BBC RemArc has been up and running for some years. Just click here... https://remarc.bbcrewind.co.uk/
There's other prpojects working on the funding side eg https://www.kickstarter.com/projects/studiomeineck/music-memory-box-new-tech-for-people-living-with-d/description