I watched it tick over last night too. Everyone has done brilliantly!
Further to your story, a friend (we’re well rural)was showing worryingly increasing symptoms. He was trying to ignore it but a couple of months ago went to his GP and was told the wait here is 44 weeks for an NHS neurologist appointment. 🙄 So he stumped up and got a swift private appointment, a Parkinson’s diagnosis, and started treatment.
No one needs this, but it’s especially unhelpful because his wife has Parkinson’s, so he’s positioned himself with an essential role in the house and in giving support. Up to now he’s deployed strength, in all senses, and energy and life was carrying on. Hence some denial. Facing it was brave. Those of us with close Parkys know too much.
The good news is that he’s feeling a fair bit better with medication. But if he’d had to wait the best part of a year for diagnosis and drugs they’d have been in a pickle.
What a sad if all too typical story - we are fast developing a two-tier system for Parkinson's. But glad your friend is feeling better - send him our best wishes
Thanks - will do. It doesn’t seem long ago that going private was pretty unthinkable, in my circle at least, on principle. Now we all know it’s the sensible route - if (very big “if”) you have the funds.
If you don’t it’s 44 weeks, chum.
I’m somewhat seething at the policies that have got us here.
Anyway. It’s a day of jubilation at your achievement! So grumpy hat off and happy one on 😄.
Such an incredible achievement. I am a consultant geriatrician and specialist in Parkinson’s disease and finding it difficult to make the powers that be aware of the importantance of early diagnosis and regular follow up for patients and not on a 9 monthly or yearly basis.
It's a fantastic achievement. Congratulations to everyone who signed and/or who motored the petition forward. Bravo Movers and Shakers! I know this is only the beginning, but it gives Hope. And, as you say, the P'n community are now uaed to having their voices heard. Brilliant 👏
Fantastic effort and my thanks to all who have devoted so much time to get those signatures. Thanks too to Rory for keeping us up to speed on the progress.
Absolutely fantastic! I was out that evening and sat in my car watching the number of signatures creep from 99,996 to 100,000 before I went to the venue I was going to. A wonderful thing to see!
Excellent! The speeding up of signatures supporting the petition has been brilliant! And thank you to that Mark for his input. I’m prepared to pester on! Is a quarter million within reach, I wonder…
Congratulations from a follower in the US! It is remarkable what the Movers and Shakers have accomplished in such a short time. I remember when the group didn't realize we have to avoid food around meds. That's pretty basic! You've come a long, long way. Thank you for your work.
A fantastic achievement, good work but not finished yet as you acknowledge. I like Margaret Frood's ambition of 250 000, numbers count, but also we, the Parkinson's Community, need to contribute our expertise to finding strategies for achieving better services and put as much energy and positivity into finding solutions. Remember too that Health is a devolved responsibility we need a 4 nations approach.
I watched it tick over last night too. Everyone has done brilliantly!
Further to your story, a friend (we’re well rural)was showing worryingly increasing symptoms. He was trying to ignore it but a couple of months ago went to his GP and was told the wait here is 44 weeks for an NHS neurologist appointment. 🙄 So he stumped up and got a swift private appointment, a Parkinson’s diagnosis, and started treatment.
No one needs this, but it’s especially unhelpful because his wife has Parkinson’s, so he’s positioned himself with an essential role in the house and in giving support. Up to now he’s deployed strength, in all senses, and energy and life was carrying on. Hence some denial. Facing it was brave. Those of us with close Parkys know too much.
The good news is that he’s feeling a fair bit better with medication. But if he’d had to wait the best part of a year for diagnosis and drugs they’d have been in a pickle.
More power to you. Elbows out.
What a sad if all too typical story - we are fast developing a two-tier system for Parkinson's. But glad your friend is feeling better - send him our best wishes
Thanks - will do. It doesn’t seem long ago that going private was pretty unthinkable, in my circle at least, on principle. Now we all know it’s the sensible route - if (very big “if”) you have the funds.
If you don’t it’s 44 weeks, chum.
I’m somewhat seething at the policies that have got us here.
Anyway. It’s a day of jubilation at your achievement! So grumpy hat off and happy one on 😄.
🍾🍾🍾
Such an incredible achievement. I am a consultant geriatrician and specialist in Parkinson’s disease and finding it difficult to make the powers that be aware of the importantance of early diagnosis and regular follow up for patients and not on a 9 monthly or yearly basis.
It's a fantastic achievement. Congratulations to everyone who signed and/or who motored the petition forward. Bravo Movers and Shakers! I know this is only the beginning, but it gives Hope. And, as you say, the P'n community are now uaed to having their voices heard. Brilliant 👏
Well done Rory - I knew you would do it! All the best, knowing how pleased Michael Blakstad would have been, Penny
Fantastic effort and my thanks to all who have devoted so much time to get those signatures. Thanks too to Rory for keeping us up to speed on the progress.
Absolutely fantastic! I was out that evening and sat in my car watching the number of signatures creep from 99,996 to 100,000 before I went to the venue I was going to. A wonderful thing to see!
Excellent! The speeding up of signatures supporting the petition has been brilliant! And thank you to that Mark for his input. I’m prepared to pester on! Is a quarter million within reach, I wonder…
Well done!
Congratulations from a follower in the US! It is remarkable what the Movers and Shakers have accomplished in such a short time. I remember when the group didn't realize we have to avoid food around meds. That's pretty basic! You've come a long, long way. Thank you for your work.
I’m so impressed and happy for you all. Huge congratulations, the dedication of all involved is fantastic. Onwards and upwards!
Many congratulations, very good news
A fantastic achievement, good work but not finished yet as you acknowledge. I like Margaret Frood's ambition of 250 000, numbers count, but also we, the Parkinson's Community, need to contribute our expertise to finding strategies for achieving better services and put as much energy and positivity into finding solutions. Remember too that Health is a devolved responsibility we need a 4 nations approach.
Well done to everyone involved.I think you have done extremely well
Janet
Wonderful work everyone!!!!
What an achievement! I will write to my MP, a GP much concerned with health issues, and press for positive support.
Amazing effort and result, well done to you all.