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Paul Akehurst de Visme's avatar

Well said Rory

In the current climate anything that saves money for the government could be a vote winner. And just doesn't stop at Parkinson's. Many long-term diseases cost the government more in care and then research and cures.

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Barry North's avatar

I like both the idea and the strategy for a coalition of Charities engaging lawmakers and of focusing on improving both care and a cure. Within days of being elected in 2019, our local MP visited our monthly Drop In Cafe but sadly has not responded to subsequent approaches (busy bloke I guess). This is in contrast to his predecessor (Anna Soubry) who, after a rocky start, was actively engaged with Constituency events and badgered Ministers about issues we raised. As a retired Civil Servant, I must emphasise the need for Charities to present a united front if we want to be taken seriously by Departments. I was frankly dismayed when people felt the need to create a separate Charity for research into a cure. In my view this resulted in a diversion of giving from “Care” to “cure”, rather than additional donations from the public. And loss of charitable contributions for PDNS has resulted in these posts being absorbed into wider roles within a cash strapped NHS.

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